From the Bottom of My Heart, Thank you.

Welcome back I know I missed last weeks blog post but I took a small (not complete) hiatus from most social media and didn't post much about anything You guys know how much I love celebrating Scarlett's milestones, both BIG and small. I sometimes get a little carried away, and who could blame me? Well...last …

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Epilogue: Balancing Act – Life after NICU

After Scarlett's grand escape from NICU, she and I didn’t immediately go home. Home for us is actually 2 hours away in Andrews, Tx.  So going “home” for Scarlett meant an extended stay at Grandma Sylvia's and Popo’s house (my mom & her boyfriend).  Both of whom we are so incredibly thankful for, for opening …

Chapter Thirteen: Moving Mountains

The day had finally come for BJ and I to "Room In" with Scarlett and I was anxious to see how it would go. This was it. The final test before going HOME. I remember talking with Perlita a few days before (the last time I would talk to her in NICU) and she offered …

Chapter Twelve: Someday Soon

We were a couple of weeks into March already and it felt like we were stuck in NICU limbo. Scarlett was on .3 LPM oxygen and she would not give it up. Every time they tried to wean her down even just a smidge, she would NOT have it. She was happy right where she …

Chapter Eleven: Just Keep Swimming, Just Keep Swimming…

Scarlett was doing so much better! She was on Nasal Cannula and that light at the end of the tunnel which seemed unreachable was finally coming into focus.  It was as if the dust from a sandstorm had finally settled down and we could find our way home. I remember as I was leaving Scarlett's …

Chapter Ten: More Than Meets the Eye

On February 9, 2018, just two and a half weeks after being on CPAP, Scarlett graduated again and was put on High Flow Nasal Cannula. It was such a relief! Not only did it mean that her lungs were growing stronger but she was also that much closer to going home. But she wasn't going …